Internationale Fabry hjemmesider:
- Brazilian Association of Fabry Disease
- Fabry Support Group Australia - Australia
- FSIG - Fabry support and information group
- Canadian Fabry Association
- CORD ( Canadian Organization for Rare Disorders )
- BOKS ( Belgien Fabry Group )
- MPS Society ( Community for MPS and Fabry)
- FIN - Fabry International Network
- Fabry Support Ground Australia
- LDA - Lysosomal Disease Australia
- Fabry Support and Informatie Groep Nederland
- MS Liitto - Finland
- APMF - France
- VML - Lysosomal Storage Disorders France
- Fabry Disease - Hungary
- GIPF - Italy
- AIPAF - Italy
- Morbus Fabry - Germany
- Pasientforening - Norway
- MPS Association - Spain
- ADAC - Asociacion Fabry - Spain
- FabrySuisse - Swiss
- Genetic Alliance
- GOLD - Global Organization for Lysosomal Disease
- National Fabry Disease Foundation
- New England Fabry Support Disease
- FabrySociaty
