Medicinal Firmaers "community sites"
Shire har følgende "community sites"
- Fabry Patients
- Focus on Fabry
- Replagal - Shire
- Brave Community - News and Insights in Certain Rare Disease
Genzyme har følgende "community sites"
- Fabry Community
- Genzyme - The making of protein Therapies ( An insight on how "ERT" is made)